Privacy Policy

Our Commitment to Privacy

This platform, defined to include any access via a web browser and any related application (collectively “Platform”), is provided, owned and managed by IQVIA™. IQVIA is committed to protecting your privacy. This Platform is provided by IQVIA for the purposes of supporting your potential or actual participation in one or more clinical trials or other health-related research ('clinical trials') and the accompanying use and disclosure of your personal information, either as a patient, carer or as a member of the study team (PI, Virtual Study Coordinator, Study Concierge, etc.). This Privacy Policy covers your full engagement with IQVIA current and future clinical trials and other health care-related research, from your initial interaction with the platform to the beginning of your contact with a potential trial, through participation in any trial and potential participation in other trials and additional uses of your personal information as identified in this Privacy Policy to support medical research. This Privacy Policy describes how we use, disclose and protect any personal information that we collect or receive from you or on your behalf through this Platform, whether as a potential clinical trial or healthcare research participant, patient, data subject or healthcare professional. If you are participating in a specific clinical trial as a trial participant, this Policy supplements the information you have received or will receive as part of the clinical trial’s informed consent process. The informed consent form (“ICF”) and research protocol will define how information about you will be used in connection with the clinical trial. This Policy is intended to meet applicable legal requirements globally, including in North America, Europe, Asia Pacific and other relevant jurisdictions and supplements the IQVIA Privacy Policy and Online Privacy Policy, which can be found at www.IQVIA.com

The Information We Collect

When you engage with this Platform, we will collect certain personal information from and about you in connection with your interest in clinical trial and other medical research activities. The personally identifiable information we may collect from you – meaning any information relating to an identified or identifiable natural person - can include your first name, last name, title and/or email address, contact telephone number(s) or other contact information, birthdate or birth year and postcode that you provide to us through your use of the Platform including in any of the ways explained below. It may also include additional demographic or personal health information about you that you provide to the Platform to support your interest in clinical trial or other medical research activities. It may also include certain financial information, in connection with any expense reimbursement or other compensation related to a clinical trial or other medical research. If you are a health care professional, we may also collect financial information, and academic education and professional information (including, but not limited to, business address and business name). This information is collected through direct user input as described below (“Personally Identifiable Information”). We also may obtain information about you from other sources as described in this Policy in connection with health care research activities. We may also receive information about how you use our website through the automatic operation of “cookies” and web logs and other technologies. This Policy applies to all information received through the Platform, whether automatically, through direct user input or otherwise. For example, we receive information in any of the following ways:

Information when you register for our platform

Registration is required for use of this Platform. To enable use of the system, including generating your log-in to the Platform, we may collect certain Personally Identifiable Information about you, and you may need to create a log-in and password in order to access the Platform. When you register at our platform, if you wish to learn more about current or future clinical trials, we will ask you to provide information about you that will help us identify current or future clinical trials that may be of relevance to you. This may include demographic information and (in some circumstances) certain kinds of personal health information. We will collect information from you to assist with the identification of current and/or future trials. In some circumstances we may also collect information about you from other sources to supplement this information and help us identify potential research opportunities for you.

Information as part of the clinical trial itself:

Where applicable, when you participate in a particular clinical trial (or evaluate whether to participate in a clinical trial), you will be provided with information about the trial itself and how information about you will be used in connection with the trial. The ICF for the clinical trial will govern how your Personally Identifiable Information is used in connection with a specific clinical trial. This Policy only applies to information that is obtained through this Platform in addition to the information that is collected and used for the clinical trial (for example, your registration information for this Platform before you decide to participate in a clinical trial). The ICF will be incorporated, but not merged, into this Policy. Each ICF will include, as appropriate, the scope of the study, timeline and privacy information that you agree to allow the Site personnel, IQVIA, and others involved in the study process, to collect and share and to whom that information can be shared. To the extent any terms or provisions of an ICF conflict with the terms and provisions of this Policy, the terms and conditions of the ICF shall control. If you are participating in a virtual trial, this Platform may be the primary means of collecting information relating to your participation in the virtual trial. In this event, we also will provide you with individual clinical trial results as set forth in the ICF.

Web Logs

Cookies and other technologies

How We May Disclose Your Information

Sharing Information with Clinical Trial Support Personnel and Other Clinical Trial Health Care Providers

Vendors and Service Providers

Your Privacy Choices

You can always choose not to provide information. However, if you choose not to provide information, you will not be able to use any of the services that require you to log-in and, if applicable, you may be unable to participate in the relevant clinical trial.
Where you have consented to our processing of your Personally Identifiable Information, you may withdraw that consent at any time and opt out of further processing by following the instructions in this Policy. This will not have an impact on information that has been collected, used or disclosed previously. Even if you opt out, we may still collect and use non-personal information regarding your activities on our website.
IMPORTANT NOTE: If you desire to correct, amend, or delete Personally Identifiable Information that was provided to us by third parties (and not directly by you), you may contact us to access, correct or remove your information from our files. However, we also recommend that you contact the third-party website operators or other entities to whom you have provided such information under such third parties' privacy policies, as we do not control and are not responsible for those practices or privacy policies.
If you receive automated email messages or other emails that you prefer not to receive, please send an email to privacyofficer@iqvia.com for further assistance. Alternatively, if you receive an unwanted email from us, you can use the unsubscribe link found at the bottom of the email to opt out of receiving future emails. We will process your request within a reasonable time after receipt. Note that you will continue to receive transaction-related emails regarding services you have requested. We may also send you certain communications regarding our services and you will not be able to opt out of those communications (e.g., communications regarding updates to our Terms of Use or this Policy).
We maintain “do-not-call” and “do-not-mail” lists as mandated by law. We process requests to be placed on do-not-mail, do-not-phone and do-not-contact lists within 60 days after receipt, or such shorter time as may be required by applicable law.

Depending on your jurisdiction, you may also have certain legal rights in relation to the processing of your Personally Identifiable Information. These rights may include:

The right to access your information (including a data portability request);
The right to correct or amend any information we have on file about you;
The right to delete your information;
The right to limit the use of your “sensitive” information;
The right to opt-out of the sale or “sharing” of your information;
The right to opt-out of the use of your information for targeted advertising purposes;
The right to restrict or object to the processing of your information (such as for direct marketing purposes);
The right to restrict the use of your information for certain automated decision-making (including profiling); and
The right to revoke your consent (to the extent applicable).

PLEASE NOTE:

Although we make good faith efforts to provide users with access to their Personally Identifiable Information, there may be circumstances in which we are unable to provide access or delete certain information, including but not limited to where the information: contains legally privileged information, must be maintained according to law, would compromise the integrity of the clinical study or the study data, would compromise others’ privacy or other legitimate rights, where the burden or expense of providing access would be disproportionate to the risks to the individual’s privacy in the case in question, where it is commercially proprietary or where the information must be maintained in connection with the clinical trial. If we determine that access should be restricted in any particular instance, we will provide you with an explanation of why that determination has been made and a contact point for any further inquiries. To protect your privacy, we will take commercially reasonable steps to verify your identity before granting access to or making any changes to your personal information. All requests received from you under this Policy will be processed in line with applicable local laws.

Do Not Track

Users that are participating in paediatric trials will be asked to enter a date of birth. If the date of birth is under the age of 18 or legal majority in their country, the user will not be allowed to continue and submit the information unless that information is submitted by a parent or guardian.

Children's Privacy

Protecting the privacy of the very young is especially important. This Platform is not intended for or designed to attract minors. Users under the age of 18 or the age of legal majority in their country should not submit information to our Platform, and we do not collect, receive or knowingly keep information from any user we know or have reason to believe is a child under the age of 18 or age of legal majority, unless the information is provided by a parent or guardian. If a child has provided us with Personally Identifiable Information, the parent or guardian of that child should contact us if they want this information deleted from our files. Users that are participating in paediatric trials will be asked to enter a date of birth. If the date of birth is under the age of 18 or legal majority in their country, the user will not be allowed to continue and submit the information unless that information is submitted by a parent or guardian.

Data Retention

The information you provide to us may be archived or stored periodically by us according to backup processes and will only be retained for as long as is required for the purposes for which it was collected, to provide our products and services to you, to support your participation in clinical trial activity, resolve disputes, establish legal defences, conduct audits, pursue legitimate business purposes, enforce our agreements, and comply with applicable laws.

Accountability/Compliance and How to Contact Us

We are committed to protecting the privacy of our Platform users. We have posted this Privacy Policy to communicate the specifics of this commitment. If you wish to access, correct, update or request removal of any of your information you provided to us or if you have any questions regarding this Privacy Policy or would like more information on our privacy practices, please contact us at: privacyofficer@iqvia.com. We will address your concerns and attempt to resolve any privacy issues in a timely manner. In addition, we will address any complaints or questions that our users may have regarding this Privacy Policy or its implementation. If you have a complaint or question about our Privacy Policy, please email to PrivacyOfficer@iqvia.com. We will respond to your comments or concerns as soon as possible following receipt of your inquiry. If any request remains unresolved, you may contact: IQVIA’s Privacy Office at privacyofficer@iqvia.com. If you are a resident of the European Union or Switzerland and feel that any request or complaint remains unresolved, you may contact your national data protection authority for your EU Member State which can be located through the following European Commission website: https://ec.europa.eu/info/law/law-topic/data-protection/reform/what-are-data-protection-authorities-dpas_en. As this Privacy Policy explains, we are responsible for determining the purposes and means for the handling and processing of personal information subject to this Privacy Policy. In most cases IQVIA is the “controller” of your personal information collected through this Platform for purposes of compliance with the Data Protection Law of the European Union. If IQVIA is acting on behalf of a clinical trial sponsor, then that sponsor may instead be the controller of such Personally Identifiable Information. For queries by post to IQVIA, please write to: 2400 Ellis Rd, Durham, North Carolina 27703, USA

Links to Other Websites

Our website may contain links to other third-party websites. You should carefully review the privacy policies or notices and practices of other websites, as we cannot control or be responsible for their privacy policies, notices or practices. For links to other company web properties, please review those privacy terms as well as they may differ from those on this website.

Notification of Changes

As we provide more information and services on our Platform and as privacy laws and regulations change, we may need to revise or update our Privacy Policy from time to time. We will always change the “Last Updated” date on the Privacy Policy to reflect when it was last revised. If we make a meaningful change to the Privacy Policy, we will notify you here, by email or by means of a notice on the Platform home page. However, we will always continue to protect your Personally Identifiable Information according to the law and as described by our current Privacy Policy. Additionally, before we use Personally Identifiable Information for any new purpose not originally authorised by you, we will endeavor to provide information regarding the new purpose and give you the opportunity to opt out. Where your consent for the processing of Personally Identifiable Information is otherwise required by law or contract, we will endeavor to comply with the law or contract. This Policy was last updated January 2023.